Sumary of Meet the Patients Who Helped Run A Big Aspirin Trial In an effort to improve outcomes and de-mystify the scientific research process, these patients were asked to help design and run a research project.:
- ” He was phoning to invite McCormick to participate in a research study on aspirin in heart disease.
- The study, called ADAPTABLE, was developed under the Patient Centered Outcomes Research Institute and the recruited patient advisory board named themselves the “Adaptors”.
- Before becoming an Adaptor, Linda Brown completed a community outreach program at Vanderbilt University, where she answered questions from doctors and researchers about her heart condition.
- She was not convinced that “regular” people could participate in research but changed her mind “a full 180.” McCormick was also skeptical and assumed that their suggestions would be ignored.
- ” Real Patient Involvement Is Not a Box Check Brown and McCormick’s initial skepticism is not unfounded.
- Madelaine Faulkner, who was the patient facilitator on the trial, has heard from numerous patients who were involved in research and had really bad experiences.
- Before agreeing to participate in research, patients must sign forms that grant them the right to hear the results of the study.
- But patients rarely follow up to request a final results paper, Faulkner says.