Sumary of Task force focuses on quality-of-life issues ‘most relevant to our AYAs’ with cancer:
- November 19, 2021 4 min read Source/Disclosures Published by: Disclosures: Parsons reports a consultant role with Seagen.
- Back to Healio Cancer in adolescents and young adults has become an important area of focus in oncology research.
- However, few data are available on quality-of-life outcomes for patients living with cancer during this often uncertain, sometimes turbulent time.
- “The AYA [adolescent and young adult] population has largely gotten lost within the older-adult trials vs.
- Roth, MD, co-director of the AYA program at The University of Texas MD Anderson Cancer Center, said in an interview with Healio.
- Sacco Adolescent and Young Adult Cancer Program for Cancer at Tufts Medical Center, showed only 20% of phase 3 clinical trials since 2007 involving AYAs with cancer included the collection of information about patients’ health-related quality of life (HRQoL) during and after treatment.
- In response to the need for greater focus on this patient population, Roth and Parsons have established a task force devoted to facilitating the collection of patient-reported outcomes (PROs) from AYAs on the impact of cancer and its treatments on their health and HRQoL.
- The AYA PRO Task Force, sponsored by the NCI’s Childhood Cancer Data Initiative, was introduced last year and is led by Children’s Oncology Group.