Story of BRENDA educates Black community on genetic testing, breast cancer prevention


Sumary of Story of BRENDA educates Black community on genetic testing, breast cancer prevention:

  • Lower participation rates have been reported for Black patients in cancer and cardiovascular clinical trials, for example, with reasons to explain this ranging from clinical trial design to complex sociocultural factors..
  • Genetic counseling and gene testing have the potential to improve health outcomes through early detection of genetic variants, enabling subsequent prevention measures, which have been well-documented in breast cancer and Lynch syndrome..
  • Among them are the now-infamous Tuskegee Syphilis Study, in which scientists observed the effects of untreated syphilis in young Black men, and the story of Henrietta Lacks, whose cancer samples were used for research without her knowledge..
  • Interactions and education on a personal basis between clinicians and minority populations may lead to positive results and to subsequent cancer preventive measures using genetic counseling and gene testing..
  • Our community education and health outreach team created a breast cancer program tailored for the Black population in Delaware, which ranks among the states with the highest percentage of triple-negative breast cancer, especially among Black patients..
  • Non-Hispanic Black patients have higher breast cancer mortality in Delaware than non-Hispanic white patients, and younger non-Hispanic Black patients have significantly higher age-adjusted mortality than non-Hispanic white patients..
  • One of the goals of our breast cancer research program is to provide an infrastructure that promotes a bench-to-bedside and bedside-to-community continuum for tissue and blood repository, a breast cancer database and, importantly, a community research advisory board..
  • This program started when a young Black woman was diagnosed with triple-negative breast cancer, shocking the local community..
  • BRENDA — an acronym that stands for breastfeed, reduce consumption of alcoholic beverages and sugary drinks, exercise 150 minutes per week, nutritious foods, do not smoke and achieve a healthy body weight — is designed to educate that community about measures to lower their risk for developing breast cancer…

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